Hey, how are ya?!
Who am I?
My name is Joey Mullaney, and I am a 26-year-old man, born and raised in Leominster, Mass. When I was thirteen-years-old, I was told that I have a rare neurological disorder called Friedreich’s Ataxia (FA). FA is a rare degenerative neuromuscular disorder that diminishes coordination, mobility, speech, and organ function, confining me to a motorized scooter.
After graduating from Lawrence Academy Prep High School in 2013, I pursued a Bachelor of Art’s degree from Quinnipiac University in 2017. Undeterred by my physical debilitation, I made up his mind to live life as fully as possible. I graduated serving as a Fraternity Man in Sigma Phi Epsilon, an Orientation Leader, and Student Body President.
For many years, the news of FA blindsided me. Even though I was far from alone, I still felt like the only person on the planet. Since that time, the road to self-awareness, confidence, and acceptance has been a bumpy ride. A terminal diagnosis will do that. I may have accomplished a lot in life, but the “mental” journey took a while. Admittedly I wasted a lot of time thinking about how little time I might have, and it struck me: That’s sort of dumb. So, I decided to take the ticking time clock and embrace it while I can, and that is exactly what I am doing now! Instead of fighting time, I’m partnering with it.
I am an Adaptive CrossFit Athlete in my daily life. I have my own memoir coming available soon and am a motivational speaker. In 2019, I received a Master of Arts in Communications degree from Emerson College.
What Is This Website About?
Making Time Count.
See, hear and read stories that will motivate and inspire.
I, and others, will share our insights on the ups and downs of my life, how we navigate the unexpected, what we believe we gain each day despite our tribulations, and how much fun, despite any adversity, life can be.
I am in no way saying I have zero worries about my health … I mean, I can’t simply ignore how sick I’m getting. But even though I have physically lost a lot, I have gained much more in purpose and heightened living.
Most importantly, my goal is to open the dialogue about how we all make it work (or don’t) in this mad world and share ideas and experiences about finding a way out of the madness.
Want To See More?
One Love, Joey