Rare Disease Day!

Hey, how are ya?!

Although it is not Friday, today holds a massive significance. Today, February 28th, is Rare Disease Day! 

Rare Disease Day

According to raredisease.org, Rare Disease Day’s main objective is to raise awareness amongst the general public and decision-makers about rare diseases and their impact on patients’ lives. This campaign primarily targets the general public and also seeks to raise awareness amongst policymakers, public authorities, industry representatives, researchers, health professionals, and anyone who has a genuine interest in rare diseases.

Rare Disease Day

To help FARA and myself spread awareness on RDD, follow this link:

Choose one of these three placards to complete with something about you that you feel is strong or that makes you proud. You can print the placard, write in your response, snap a photo of yourself holding it, and post it to social. Or you can write in your answer on the placard electronically and post to social media using these hashtags, #cureFA and #RareDiseaseDay

“All Things Excellent Are As Difficult As They Are Rare”

One Love, Joey


Image of Barbara


Through my volunteer work, I have met many people with Rare Medical Conditions and Diseases. There too often is little or no resources for them and their families. I love what you have been doing to raise awareness. Thank You!

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