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Home 2018-06-04T21:47:50+00:00

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Hey, how are ya?

I’m Joey Mullaney. I am a recent college graduate of Quinnipiac University. I was born and raised in Massachusetts. When I was thirteen years old I was told I had a rare neurological disorder called Friedreich’s ataxia (FA). I went from being a star athlete to reliant on a wheelchair in just a few short years.

The news blindsided me, to say the least, and even though I was far from alone, for a while I felt like the only person on the planet. Since that time, the road to self-awareness, confidence, and acceptance has been a bumpy ride. A terminal diagnosis will do that. Admittedly I wasted a lot of time thinking about how little time I might have, and it struck me: That’s sort of dumb. So, I decided to take the ticking time clock and embrace it while I can, and that is exactly what I am doing now! Instead of fighting time, I’m partnering with it.

Like how?

Well, you’re going to have to stay tuned to the blog each week to find out. Which brings me to the mission of this website: This forum is just as much about you as it is about me. I figured other young people, whether in high school or college, working their first job or still in the stage of life where they’re figuring it all out, might feel alone like I once did. Maybe you too have been blindsided by something or someone and feel unprepared to handle the hand you’ve been dealt. I will share my insights on the ups and downs of my life, how I navigate the unexpected, what I believe I gain each day in spite of my tribulations, and how much fun, despite any adversity, life can be. And when I am lost for words or am myself having a crappy day, I will talk about Tom Brady and the infinite number of reasons why he is the G.O.A.T.

I am in no way saying I have zero worries about my health … I mean, I can’t simply ignore how sick I’m getting. But even though I have physically lost a lot, I have gained much more in purpose and heightened living.

Most important, my goal is to open the dialogue about how we all make it work (or don’t) in this mad world and share ideas and experiences about finding a way out of the madness.

One Love,

Joey

My Story

My Story

SOME OF MY STORIES

What Is Friedreich’s Ataxia?

Friedreich’s Ataxia

What Is Friedreich’s Ataxia?

Friedreich’s ataxia (FA) is a debilitating, life-shortening, degenerative neuro-muscular disorder. About one in 50,000 people in the United States have Friedreich’s ataxia.

FA is a very rare and complex disease where a good amount of its affects harm your nerves, throwing off your hand-eye-condition and balance. (Hence why many of us use walkers, are in wheelchairs, or motorized scooters).

Its progression begins at your toes and progressively works up to your heart slowly diminishing the muscles in the body.

How To Get Involved?

To learn more about FA and help us all affected, and our families and friends that don’t want to see their loved one’s suffer anymore, find a cure for this terrible illness, visit this website!

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